Craniosynostosis: Our Journey

Published on: November 8, 2008

Filled Under: Craniosynostosis

Views: 15862

This post is more personal…but that’s ok since it’s my blog, afterall. When my son was 2 months old, he was diagnosed with Craniosynostosis. This is when the infant’s sutures (soft spots) prematurely fuse together. There are different kinds of craniosynostosis and some are more severe than others. Luckily, he had mild sagittal synostosis. The sagittal suture runs from a spot at the front of the head to the back of the skulI. Fusion of the suture results in a long, narrow skull.

Surgery of sagittal craniosynostosis involves removing the suture and widening the skull by opening up the sutures on both sides of the head. My son had surgery 5 days before he turned 3 months old. He was released from the hospital in the afternoon of the third day.

He healed quickly, as children do, and was just fine. Now my son is 5 1/2 years old. We are going in for an appointment to check his cranial structure. Hopefully everything is as it should be!

Below, you’ll see a BEFORE and AFTER picture of the surgery….dramatic results.

6 Responses to Craniosynostosis: Our Journey

  1. nds says:

    wow,i can believe that. thank godness, you are very kind for the baby and his family.

  2. Work At Home says:

    Excellent post! Love your site. I really got much joy reading it. Thanks for the info.

  3. Jani Postell says:

    finally discovered somewhere with helpful details. thank you and keep it coming 🙂

  4. Thanks for sharing this, good post.

  5. Christina says:

    Thankyou for your post it has given me a little clarity the only worry i have now is that my son is 7mths going on 8 mths and there barely noticing it …..he has the same shape in his head and has been referred to a specialist and we still have to wait for a month for an appointment. Did your son have and other symptoms.

  6. As far as I know, I think my niece was diagnosed with craniosynostosis. I’m glad to know that she can get surgery to fix it, so I’ll find a good clinic that offers this. Hopefully, the results will be dramatically positive so that she’ll live a normal life.

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